HHR chairman has rare disease

Don Perdue wants to public to know about Wegener's granulomatosis

CHARLESTON, W.Va. - Just days before the opening of the 2002 legislative session, House Health and Human Resources Committee Chairman Don Perdue knew something was terribly wrong with his body.

By Eric Eyre
Staff writer

CHARLESTON, W.Va. - Just days before the opening of the 2002 legislative session, House Health and Human Resources Committee Chairman Don Perdue knew something was terribly wrong with his body.

Perdue had pain in his joints. He was fatigued. His vision was failing him.

"They had to literally help me out of my chair on the House floor," Perdue recalled. "I was severely debilitated."

The rest of this article is here.

My notes: I am very happy to see more information about Wegener's Granulomatosis (and other vasculitis diseases) in the News and internet, considering that when I was first diagnosed in 2001 the stats for WG was one in a hundred thousand people who had the disease. Now the stats have changed to one in thirty thousand.

So how many more people have this disease, but don't know it?